Response to the Consultation on the Review of the Directive on the Re-Use of Public Sector Information
Science Europe supports the principle that research data should be “as open as possible and as closed as necessary.” However, the particularity of research data as well as of data about research activities requires careful consideration on which aspects are better dealt with by legislative acts or by guidelines developed by the research sector.
Text and Data Mining (TDM) helps the analysis and extraction of new insights and knowledge from vast amount of digitally-available content. It offers great potential for research, but also for the economy and society as a whole since it enables innovation. This paper gives an overview of some of the legal hurdles faced by researchers using TDM practices, flags possible action lines for research organisations, and calls for a more science-friendly EU copyright law.
The Benefits of Personal Data Processing for Medical Sciences in the Context of Protection of Patient Privacy and Safety
This paper expresses the concerns of the medical and health research communities about the lack of a specific consideration when regulating the privacy of individuals and protecting personal data in the context of medical and health research in the General Data Protection Regulation.